The daily-ness of autism

When you are raising a child with special needs, you encounter many family dynamics and situations that are not covered by the standard parenting practices. It's hard to even define a "normal" day in a house with a special-needs child. The minute they receive their diagnosis, life ceases to be "normal." The best you can do is to create your own "new normal."

The special need we deal with in our household is autism. Despite what you read and hear from a few famous folks - autism has no specific known cause, no known cure, and no standard method of treatment. Many therapies have been proven to help, and many are just so much snake oil. Every autistic child is different. Not even a doctor can say which child will respond favorably to which treatment.

We are some of the "lucky" ones. Our son was diagnosed PDD-NOS when he was 31/2. After a year in a special preschool (offered gratis by our public school, otherwise he couldn't have gone) the doctor said he could now be considered merely Aspberger's (the mildest form). On a good day Chris seems just a little eccentric. On a bad day (or bad week, or month), like recently - well - let's just say postage to Timbuktu or Saskatchewan starts looking pretty good. For me.

People try to be helpful. "Well, I saw on Supernanny..." Um, no. Unless you have an autistic child or are trained to work them, you DON'T understand. No matter how much you think you do. If you have an autistic child you can safely throw all your regular parenting books out the window. What works with them changes yearly, monthly, daily, sometimes hourly. Schedules help. But as any mom knows - life happens to schedules.

I have within the past few years become blessed by friendship with the moms of some of my son's classmates/Scout mates. When we have a chance to talk - wow, the relief! Yes - here is somebody who understands what my life is like. For me, the hardest part of the day is from 4PM to 8PM - the time when my kids are all home but my husband isn't yet, and I have to somehow make dinner, referee homework, and sort out the various autism drama that each new day brings. With a constant eye on making sure Chris doesn't get red food coloring or MSG (autistic kids are notoriously sensitive to food additives) and an eye on his nutrition and vitamins (autistic kids are notoriously rigid eaters), keeping track of what this week's "currency" is to use for discipline, and hovering over him like a hawk to make sure he hasn't found yet another new thing to stim off of - those few hours can be the most exhausting of my whole day.

Oh, and let's not forget about the family dynamics between the autistic child and his "normal" siblings (though really, who knows how normal or not they are - since all the traits cluster together even without a formal diagnosis). Toss in one probably-should-have-been-diagnosed-ADD mom frantically trying to hold the whole schedule together - and you get what I lovingly refer to as My Three Ring Circus.

You know, people got on my case for years about why I wasn't Using My College Degree. Ha! If only they'd known. I tell you what - that degree in Psychobiology may not have led to a career, but it has become one of my most useful weapons in the war against autism. Funny isn't it, how things work out?

For now, it's back to my regularly scheduled chaos.